I am passionate about re-defining what it means to be a parent of a special needs child
I attended Clark University in Worcester, MA and graduated with a BA in 1991. I completed my masters in social work at NYU in 1993, and began working at the Staten Island Mental Health Society. I provided therapy to children and their families.
I then worked at a day treatment facility in Westchester, NY. This population better suited my interests as these children had more intense special needs.
I spent the next four years working with a multidisciplinary team to provide individual, group, and family therapy.
I left in 2001 after the birth of my first child to devote my time to being a full-time mother.
In 2005 my third child was born with a rare genetic syndrome called Smith Magenis Syndrome.
I am passionate about re-defining what it means to be a parent of a special needs child. I am an active blogger on my Strength for Sydney site and have written dozens of blogs with brutal honesty and insight sharing my unique perspective with the community
In 2010, I co-founded The SMS Research Foundation. A fellow parent of a child with SMS and I noted a paucity in the amount of clinical research being performed for SMS, and felt that an organization was needed with the sole purpose of improving the scientific knowledge in SMS.
I love to exercise and compete. I have participated in many running events, including half-marathons and triathlons, and utilize these races as a means of improving my physical and mental endurance. I have managed to combine fitness and fundraising and these events are used to raise awareness for SMS.
I reside in Wilton, CT, with my husband and three children.